This blog is for our friends beautiful daughters who need our help with this rare and wonderful opportunity.
Moana & Leilani’s
Flight for Sight
Moana and Leilani are two sisters, born two years apart, who have more in common than you would think. Both were born with a rare genetic condition, Leber’s Congenital Amaurosis, which causes blindness from birth. Moana has light perception, while Leilani has some functional vision but doesn’t see in 3D.
Moana loves to sing and play the piano, while Leilani loves to play dress-ups and dance!
Moana and Leilani’s parents can still recall the feelings of shock and devastation as each girl’s diagnosis was given when the girls were very young, especially when the doctors told them that there was no treatment available.
However, years later after receiving an email from a friend Moana and Leilani’s parents have discovered that there is treatment available, just not in
Although there are no guarantees, the stem cell treatment being offered in China by Beike Biotech, has given other blind patients improved vision and now invites Moana and Leilani to come over. The treatment and flights comes to a combined cost of $78 000 for the whole family to go together. That’s mum Honi, dad Manase, Moana, Leilani and two younger sisters, Tynisha and Xuela. So the family is busily fundraising to give the girls a FLIGHT for SIGHT!
Moana often asks, “What is it like to see?” Moana’s parents hope that if the treatment is successful both Moana and Leilani will more fully know for themselves the answer to such a question.
If you would like to help Moana and Leilani on their FLIGHT for SIGHT an account has been established Account Name / Swift Code / BSB / Account No.: Honi Faasisila / WPACAU2S / 032388 / 225164
Or call Honi on 0433 98 10 88
